Our granddaughter was born with macrodactyly involving three toes. We would love to contact others who have this condition. Our email is woodjo66@msn.com
My son is 5 and has macrodactyly. So far he has had 5 operations and is going back to Great Ormand Street Hospital London (we live in South Wales UK) on the 2nd December for a review. He has had imputation of 4 toes and operations to debulk the fatty tissue under his left foot, on his left leg, and ankle. Please contact me if yu would like further information thanks
My little girl is 21 months and has macrodactyly of her 2nd and 3rd toe. Those toes are also conjoined (syndactyly) to the very top. We have are first consultation with a orthopedic surgeon on the 9. I am very excited and very nervous to think of my little girl going through surgery(mostly nervous). Any advice, or input would be welcome. we live in the USA in Utah fallie19@yahoo.com
My 11 month old has macrodactyly of the 2nd toe and the big toe is not any longer, just fatty - from all the extra tissue. Please contact me if you wouldn't mind. We haven't done any surgery yet, b/c our dr. doesn't think it's necessary at this time. Any advice or input is great! We live in US. Thanks, Sara sarableyenberg@hotmail.com
My son is 5 and has macrodactyly. So far he has had 5 operations and is going back to Great Ormand Street Hospital London (we live in South Wales UK) on the 2nd December for a review. He has had imputation of 4 toes and operations to debulk the fatty tissue under his left foot, on his left leg, and ankle.
ReplyDeletePlease contact me if yu would like further information thanks
Forgot my email address
ReplyDelete83sky@live.co.uk
Look forward to hearing from you
Take Care
My 5 year old daughter also has macrodactyly of her second & third toes on her right foot. She has had two surgeries so far. We live in Australia.
ReplyDeleteI am happy to be contacted:
trmurrells at yahoo.co.uk
My little girl is 21 months and has macrodactyly of her 2nd and 3rd toe. Those toes are also conjoined (syndactyly) to the very top. We have are first consultation with a orthopedic surgeon on the 9. I am very excited and very nervous to think of my little girl going through surgery(mostly nervous). Any advice, or input would be welcome.
ReplyDeletewe live in the USA in Utah
fallie19@yahoo.com
My 11 month old has macrodactyly of the 2nd toe and the big toe is not any longer, just fatty - from all the extra tissue. Please contact me if you wouldn't mind. We haven't done any surgery yet, b/c our dr. doesn't think it's necessary at this time. Any advice or input is great! We live in US.
ReplyDeleteThanks,
Sara
sarableyenberg@hotmail.com